04 Mar. 2014
Help Support Cystic Fibrosis
As some of you know, my wife Kaitlyn has CF (Cystic Fibrosis). She was diagnosed with it at 3 days old. Cystic Fibrosis is a genetic disease that affects mostly the lungs, but also other areas such as the pancreas, liver and intestine. It makes it very difficult to breath and it feels like you are drowning in your own body. You can read more about it here.
Over the last number of months and years, we have been struggling to find the proper care and treatment for Kaitlyn through the Ontario Health Care system, namely the HHSC, the Hamilton Health Sciences. We keep getting shuffled around from doctor to doctor, specialist to specialist, and nobody is willing to take responsibility to take charge of her care. Everybody keeps referring us on and washes their hands of responsibility. Often times, Kaitlyn has to tell the doctors what she needs because they are not familiar enough with CF.
We have exhausted all the channels offered to us through HHSC to get better care for Kaitlyn. HHSC doesn’t seem to take her situation very seriously at all, like many CF patients. The current situation with getting the costly drug Kalydeco to Ontario that significantly helps CF people is a clear example of how our government and health care system look at CF. You can read about the latest news here.
I encourage you to support us and those living with CF to get this drug approved and covered in Ontario. Please sign the petition here. We need as many signatures as possible!
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